tag:blogger.com,1999:blog-6073231987777520786.post6195389838114303697..comments2024-03-21T06:26:33.106-04:00Comments on Beach Bear Villa, HHI: My Weird Summer (Warning: this post sucks)Unknownnoreply@blogger.comBlogger20125tag:blogger.com,1999:blog-6073231987777520786.post-12271874819744217412014-09-16T17:14:29.059-04:002014-09-16T17:14:29.059-04:00So sorry to hear of your troubling news Jennifer. ...So sorry to hear of your troubling news Jennifer. Sending you sunshine and good vibes for all your family.Jillhttps://www.blogger.com/profile/04377276479172112517noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-2799614123591312282014-09-16T13:54:12.855-04:002014-09-16T13:54:12.855-04:00I'm so sorry to hear about what you, your son ...I'm so sorry to hear about what you, your son and family are dealing with. I hope now that you have some answers to what you are dealing with, you will make peace with it. I will keep you in my thoughts.Anonymoushttps://www.blogger.com/profile/08316132632135394413noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-28707419968397130852014-09-15T23:51:13.592-04:002014-09-15T23:51:13.592-04:00I am so shocked. I am so so so sorry. This is ma...I am so shocked. I am so so so sorry. This is making me want to cry. What a handsome boy you have though, and I'll be praying for you. This just plain sucks. I am so sorry. saraHhttps://www.blogger.com/profile/11695640236818490412noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-54314289778585488142014-09-15T14:30:53.175-04:002014-09-15T14:30:53.175-04:00I don't even have words...... My heart aches f...I don't even have words...... My heart aches for your son, for you....for your family! I'm glad they finally figured out what was going on with your handsome boy, but wish this was not the outcome. I'm glad you were able to get the words out, like you said, baby steps. And, I know you are a loving, adoring, mama bear (😉) and will be fighting for your son, advocating for his health, and doing everything in your power to keep him as healthy as he can be. Please know Jen, while we do not know each other "in person" my thought and prayers will be with your family as you continue on this path and find your new normal.Wendyhttps://www.blogger.com/profile/04473567562285885265noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-67869745122477620592014-09-15T12:26:51.829-04:002014-09-15T12:26:51.829-04:00I am so sorry to hear about this. On the one hand...I am so sorry to hear about this. On the one hand, Crohn's is a bear. On the other, having an answer is comforting, even if you don't like the answers. Hugs to you and your family.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-6376669381307063582014-09-13T11:42:36.946-04:002014-09-13T11:42:36.946-04:00Jennifer, I am so sorry you and your family are go...Jennifer, I am so sorry you and your family are going through this now. From reading your blog I know your family has a tight bond and you are an amazing mom so I am sure you will all get through this. It is very important for you to get it all out. I went through some very tough things when my son was diagnosed autistic after years of testing and frustration. I felt very alone and other than tons of research, the only thing that gave me solace was journaling. I can't even bring myself to read those journals now because the despair was palpable but it helped to be totally honest with my fears and anger. My thoughts are with you and your family. Nancyhttps://www.blogger.com/profile/17635700263964853241noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-78859852397121665522014-09-12T11:32:37.797-04:002014-09-12T11:32:37.797-04:00You know, Lori, I thought of you and the struggles...You know, Lori, I thought of you and the struggles you have shared about your daughter. It inspired me to rip off the bandaid and share. I have only told about 4 non-family members because I can't say the words without crying. Baby steps, first type then talk...Jennifer Juniperhttps://www.blogger.com/profile/07087072033452320694noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-85542432602577783492014-09-12T11:31:18.318-04:002014-09-12T11:31:18.318-04:00I will totally check her blog out!I will totally check her blog out!Jennifer Juniperhttps://www.blogger.com/profile/07087072033452320694noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-28620451789136430612014-09-12T10:23:10.305-04:002014-09-12T10:23:10.305-04:00I was so saddened to hear this for your family. B...I was so saddened to hear this for your family. But your photos show such a sweet boy and he certainly seems brave. And so do you. Your boy is lucky to have you. And so are the other two because you are showing them that SH** happens, and you do what you can, you don't drive yourself insane with the rest, and you love life. Good luck with everything and keep pluggin'.Rustown Momhttps://www.blogger.com/profile/12970069327566577570noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-89567395486982212972014-09-12T08:53:23.043-04:002014-09-12T08:53:23.043-04:00Oh, and by the way, she had an Autoimmune Disease ...Oh, and by the way, she had an Autoimmune Disease which involved dealing with all of the offshoots. Saw a neurologist, gastroenterologist, cardiologist, specialist for autoimmune diseases and her pediatrician on a regular basis. Lori Phttps://www.blogger.com/profile/01808703279193470654noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-43321574777513971332014-09-12T08:50:03.971-04:002014-09-12T08:50:03.971-04:00Jennifer, I'm really sorry to hear this! My he...Jennifer, I'm really sorry to hear this! My heart goes out to you - as a mom who went through dealing with a chronically sick child, I do understand your fear, frustration and irritation. Looking back, when Jessie was sick (basically for five very long years from age 12-17), I think that the MOST important thing was that we remained positive and hopeful at the heart of it all (with, of course, those occasional silent screaming in the shower moments!). <br /><br />Not giving in and becoming a victim of this disease or letting it take over our HOPE was the key for us. I think that when we keep this at the heart of it all, it somehow transfers over to our child and that can be the best healer of all sometimes. Hope this helps. Write to me if you need to talk or vent. :)Lori Phttps://www.blogger.com/profile/01808703279193470654noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-74469792025214800882014-09-12T03:14:56.939-04:002014-09-12T03:14:56.939-04:00I'm so sorry to hear this news and all you hav...I'm so sorry to hear this news and all you have been going through. Well I guess it's good to finally know what is going on and have a plan to treat it. I have a good friend who suffers with Crohns and I know how not fun it is. Hopefully someday soon there will be major breakthroughs in how to treat this disease and help your son to have a better quality of life. Best wishes to all of you. Lisa @ Shine Your Lighthttps://www.blogger.com/profile/07301618725406172528noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-88099116992127114602014-09-12T01:49:00.369-04:002014-09-12T01:49:00.369-04:00Oh Jennifer, I am So sorry!!! We are walking that...Oh Jennifer, I am So sorry!!! We are walking that same road right now too, with ironically our almost 13yr old! (I never realized that our 3 boys were the same ages!). Failure to thrive, chronic diarrhea...blood work is normal, next up is endoscopy. Our 7 month old Great Dane puppy weighs more than our son!!! shellyhttps://www.blogger.com/profile/15138326861657251385noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-78311984831749568902014-09-11T23:04:58.203-04:002014-09-11T23:04:58.203-04:00Jennifer, I am so sorry you have to go through thi...Jennifer, I am so sorry you have to go through this. That sucks so bad. I really appreciate your honesty and transparency-I cannot believe the things people say sometimes. I know they are trying to be helpful, but they need to get a clue! Aprilhttps://www.blogger.com/profile/00374586629502175461noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-43903810413119322382014-09-11T21:58:59.178-04:002014-09-11T21:58:59.178-04:00You made me cry. I have no words of wisdom or pith...You made me cry. I have no words of wisdom or pithy platitudes, but I will remember you in my prayers.<br />It plain sucks, sucks, sucks to have sick kids. ( I was glad that you ended it by saying that you are going to the gym and working on projects. You still need to do those things that make you feel like "you".) Tara @ Tales of a Trophy Wifehttps://www.blogger.com/profile/11482352114947524130noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-2085311403762448322014-09-11T20:41:02.601-04:002014-09-11T20:41:02.601-04:00Jennifer -- thoughts and prayers with your son and...Jennifer -- thoughts and prayers with your son and your family. Stay strong - keep searching - don't take anyone's word as gospel. Your story is so touching and hats are off to your son and his strength... Karens Quilts, Crows and Cardinalshttps://www.blogger.com/profile/04839869002904564355noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-74378014774496466672014-09-11T20:07:20.692-04:002014-09-11T20:07:20.692-04:00Best of luck to your son and family with this. Cro...Best of luck to your son and family with this. Crohn's used to be a virtually unknown disease. It's actually "come out of the closet" quite a bit over the last few years. My brother in law was diagnosed at 18 years old. He's almost 60 now and has been married to my sister for over 30 years. They have two grown sons. Two of my nieces have been diagnosed as well (they're sisters!). They are both in their early twenties. One runs her own catering and personal chef business and the other is a senior in college. I tell you this not to pretend that Crohn's doesn't suck, BIG TIME. But to let you know that people have been living with this, successfully, for a long time. Your son seems like a very brave boy. I'm sure you're very proud of him. As a mom my heart goes out to you. But you seem amazingly strong, too. Hang in there.<br />Blessings, Kathleen Our Hopeful Homehttps://www.blogger.com/profile/09545698852959318449noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-89870461960674626712014-09-11T19:26:27.828-04:002014-09-11T19:26:27.828-04:00I am so sorry. That majorly sucks. Like super su...I am so sorry. That majorly sucks. Like super sucks. No other words than that. Sorry. Wish you guys nothing but the best as you navigate the best way to live with this.Anonymoushttps://www.blogger.com/profile/00453791558601335940noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-54385954691669255082014-09-11T18:20:22.264-04:002014-09-11T18:20:22.264-04:00ppppffffff!!!!!!!!!!!!!!!!!!
sending you, your so...ppppffffff!!!!!!!!!!!!!!!!!!<br /><br />sending you, your son and your family a lot of good vibes !Moois van miehttps://www.blogger.com/profile/00100507341401660471noreply@blogger.comtag:blogger.com,1999:blog-6073231987777520786.post-17557440154794596532014-09-11T15:57:44.169-04:002014-09-11T15:57:44.169-04:00Wow, that really sucks. My heart goes out to you ...Wow, that really sucks. My heart goes out to you as I read this. Crohns is a horrible disease, and I've known people that have managed it well...and others that haven't. Wishing your son the best results with his treatment!Jennhttps://www.blogger.com/profile/09829127758663992087noreply@blogger.com